Friday, August 29, 2025

Stuck in a Moment

During the work / school week I make breakfast, and for the first time since surgery, today I made breakfast.  It was hard.  Before I could zip around the kitchen and dodge M and the kitties, today everything took longer and I needed little breaks.  I had a little cry and B gave me a little pep talk.  But it was a little point of progress that I tried and I will try again.  

And there have been other little points:
  • Transitioning from laying down to sitting to standing has become easier
  • Stairs
  • Showering
  • Focus - able to read books, make plans, create routines, work a little bit on projects, blog
  • Stomach - upset stomach seems to be going away and appetite is returning
Surgery was three weeks ago and it seems like so long ago, but the memories of the first week in the hospital and recovering are still so fresh.  I was in the hospital Thursday - Monday and the care at HSS is outstanding but I was so ready to leave on Monday.  The first night I was in a room to myself, but Friday - Monday I had a roommate and she was challenging.  Even with the best care being in a hospital is uncomfortable, and the addition of a challenging roommate made it even more so.  I had little rest or peace.  When we got home our AC wasn't working and my pain medication was pended.  I wasn't able to get my pain medication until Wednesday and our AC wasn't fixed until Thursday.  I wanted to scream WTF every chance I got.  So for your knowledge, my pain medication was pended because it was prescribed from NY to be filled in VA.  It took several phone calls, but once I got the right person all I had to do was explain the circumstances of my surgery and they approved the medication.  I am now off that pain medication, but those few days without it, especially after travelling home were hard with pain that brought me to tears at times.  I'm proud that I got through it and it's another point of progress.

Well, my focus is waning so I'll stop here, but I will try again. 

Sunday, August 24, 2025

Intense

Intense.  Intense is the word I keep using to describe Surgery Deux, from the moment I came out of surgery to today, everything has felt louder, brighter and harder.  

Surgery was two weeks ago on August 7th and I get waves of sadness and dissatisfaction with my progress.  I still need a lot of help / supervision.  But then I have some moments where I'm astonished at what I am / was able to do.  

The surgery, a T2 - T3 fusion and T8 - T11 laminectomy went well.  My medical team is pleased and my recovery is on track, and when I tell them how much more everything is they reply "that's because you had a lot more surgery."  I have no regrets about my medical team and HSS, they are the best.

I have yet to see my back but B checks it out every day and is amazed that they opened me up from my neck to my lower back and always encourages me for where I am from what they have done.  B is amazing, he finds the rainbows in my clouds, makes me laugh, and does not hesitate to help with the hard and gross stuff.  M is amazing as well, when we got home from the hospital she bounced all over the house with happiness and she is quick to help fetch things, keep me hydrated and sit close during a movie.  We got home a day before she started the new school year and she started with the same focus and curiosity as always.

There's a lot more to share, which I will in time, but for now - I did it and it's hard.

Goodreads

Heather's bookshelf: read

Wolf Hall
Our Missing Hearts
The Poisonwood Bible
Real Americans
A Thousand Splendid Suns
Tomorrow, and Tomorrow, and Tomorrow
Shuggie Bain
Pineapple Street
Maame
Anita de Monte Laughs Last
Happiness Falls
The Heaven & Earth Grocery Store
Tom Lake
Yellowface
The Guest List
Banyan Moon
Such a Fun Age
The Vanishing Half
Crying in H Mart
The Interestings


Heather's favorite books »